World Duchenne Awareness Day 7th September 2015

Next 7th of September is Duchenne Awareness Day and today we are leaving this space to www.worldduchenneday.org:

“One in 3,500 newborn boys in the world is affected by a rare and fatal disease: Duchenne muscular dystrophy. One in 3,500 might seem a drop in the Ocean of whole human race if we merely focus our attention on statistics. Moving from data to value, the value of life, we can discover that that ´drop´ forms a great sea made up of families, researchers, volunteers, clinicians, activists. All of them work day by day to guarantee access to care, to improve research, to educate patients and families. Education can turn a problem into a solution, pain into strength. This is why World Duchenne Awareness Day 2015 is has launched the Duchenne Balloon campaign focused on supporting education and awareness programs: a worldwide informed community is the key to a better future. No matter where you live or how old you are, you can be another drop in our ocean! Join and discover World Duchenne Awareness Day: All together we can build a more inclusive world where equal rights and opportunities are guaranteed, differences celebrated and a cure for Duchenne muscular dystrophy discovered. The World Duchenne Awareness Day got the Patronage of the European Parliament!”

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